u/FeistyMethod5171

▲ 3 r/Anemic

Hi, I made a post previously saying my levels. I got another test and they went down even more. I have pretty much almost no iron or ferritin, and my levels are almost nonexistent, and nothing seemed to be working, my doctor wanted me to schedule iron infusions and told me to call a number, but they can't even schedule me until next month and my doctor doesn't seem to really care that much, even though other people were telling me it was serious.

I have autism and struggle advocating for myself, and I am in severe pain and can only stay awake for maybe 3-4 hours right now. It's making it hard to work my full time job, and I am living alone and need to pay rent and bills , because I am only 19 and my parents were unfit to care for me so I had to leave when I was 18

the pain is severe and I don't know how to communicate properly with them, I stutter a lot and people tend to misunderstand me and I don't know what to do
they said its normal for the infusions to take multiple weeks to get on schedule for, but when you have no iron doesn't it start to put strain on your organs? I already have heart problems and I am concerned it will affect my heart.

Does anyone have any advice on what I should do? Should I just be quiet like usual and suck it up and hope nothing bad happens? I am nervous

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u/FeistyMethod5171 — 7 days ago
▲ 1 r/Anemic

I got my test results from bloodwork after lots of issues for a long time, I am curious about anemia and think I may be a little bit anemic. The doctor hasn't reviewed them yet since the tests go right into my account, but I am just curious.

the main ones were:
hgb: 7
iron: 17
saturation: 3
TIBC: 560
ferratin: 2.7
mcv: 66

I have been taking iron pills for awhile twice a day, so I don't know why its lower or in the yellow markers. I also eat lots of food with natural iron so I don't know why it's low.
I went to the doctor for extreme fatigue and other weird issues, I can only stay awake for maybe 4-5 hours a day. I'm curious if this could affect anything.

(not looking for diagnosis or anything like that, just wanted opinions)

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u/FeistyMethod5171 — 10 days ago

This is a throwaway account , since I don't want anyone from my other account to see this post. If this is a issue just feel free to delete the post.

I am a 19F who was just diagnosed a few days ago. Everyone talks about the treatment, but no one talks about what if you struggle with money and cannot afford any treatment. I live alone in transitional support housing after turning 18 when my parents weren't able to be responsible anymore and the situation was unsafe.

I work 2 jobs, one part time and one full time, and when I'm not working I have been sleeping. I don't have any hobbies or anything to be honest ,not anymore at least.

Anyways, my insurance I have is government given and not very good. From what I have been communicated with, it probably wont be able to cover the full costs. I cannot afford even 100$ right now, much less medical costs. I'd also like to mention I have autism and anxiety, I am not opposed to trying to find help in-person but wanted to try asking here for advice because maybe someone has gone through a similar situation and knows what to do before I have to speak to someone directly.

If I decline treatment, will it be 100% fatal, or is there a chance of it getting better?
Are there any medical funds or places to help me pay for medical costs or that I can apply to?
How much would treatment be? Will it depend on what the doctor says to me? Is there like a minimum range?
I think they still have to treat me no matter what, but then if I get better my life would be ruined anyways with thousands of dollars of medical debt.

I don't know anyone else to ask and it took me a year to even work up the courage to go in-person and see a doctor to begin with.
I'm not trying to be stupid or anything, I'm sorry if it comes across like that. I am just trying to learn.

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u/FeistyMethod5171 — 10 days ago