I saw my board-certified sleep neurologist for the first time today (he’s been sending NPs thus far, which would be fine if they knew about narcolepsy at least moderately). The first question from him isn’t about why I’m there or why I’m back two weeks after my last visit, but it’s “have you tried losing weight?” I do have mild sleep apnea, but I gained weight when the narcolepsy started getting serious (which is in my chart, along with being on tirzepatide & not responding), so why the f*ck would you lead with that?
I was coming to him concerned about my cognitive impairments and memory issues, with a laundry list of failed medications, and my WEIGHT was somehow the top of the priority list? Sir, I can’t remember the day of the week, and my mild TREATED sleep apnea/ weight is where you’re starting with the questions? And yes, I’m getting a second opinion at the only other narcolepsy doctor within 100 miles asap, but I’m still going WTF over the entire appointment, because that was just the start of the shitshow. My psychiatrist knows a ton more about narcolepsy than half this practice that supposedly gets most N patients in the area and I’m beyond miffed at the shortcomings in care