u/Famous-Werewolf-1870

My two and half year old has a rare genetic condition called Harel Yoon Syndrome. It's a mitochondrial disease. The doc is wanting us to discuss with GI next week getting a gtube. Both PCP and genetics are in support of this and say it will allow us to focus on enjoying our time with Emma and not worrying about the food / medicine issues.

I'm freaked out about the need for a gtube. It seems like a rather big and invasive thing... Am I overthinking this and it's not going to be all that bad? Of course, I want my kid to get the nutrients that she needs, but it's just such a big thing in my head.

Please be kind and offer any perspective to help my wife and I through this change.

Thanks in Advance!