I have a 16M son. He has autism, CRPS, and FND. He sees three neurologists, one for each condition, plus a talk therapist who just replaced his previous provider. He is at a max dosage for his current anxiety treatment (proscribed by the behavioral neurologist) and has gotten progressively worse over the last 6 months. It is impossible to get his doctors to coordinate and this is the best team we’ve had in the last four years that we’ve been spiraling.
At this point we can barely leave the house due to drop attack and psychogenic seizures when he goes to leave (locks up at the front hallway). He has a lot of trauma around school and attends a sped school and we have maybe made 15 school days in the last 4 months. We reached out for help and the best next step they recommend is referring us to a psychiatrist. That appointment isn’t until July, 2 months from now.
From a professional standpoint at what point does this become a crisis that needs urgency. We’ve been advocating and pushing to get help for years and we are back close to our lowest point (which was 4 months of dissociative amnesia 3 years ago). We are looking at being stuck in our home for 2 more months. What are we doing wrong? Is the system this broken? Is this not considered a big deal or is there something we should be saying that we aren’t?
We are in the Boston area?