Severe pain, thinking it may be endo
Hi everyone,
Looking for similar experiences or insight.
I’ve never had normal periods and have been diagnosed with PCOS. I’ve been on the birth control pill for about 17 years. Despite that, I’ve always had heavy bleeding (needing night pads and going through 4–8 per day depending on the day), along with chronic back and pelvic pain, fatigue, and bloating.
Over the last couple of years, I’ve also had intermittent right-sided pelvic pain. Ultrasounds have always come back normal.
In the last 18 months, things have gradually worsened. Especially fatigue, headaches, and diarrhoea around flares. But the last 6 weeks have been the worst.
I now have severe, constant lower back pain that hasn’t improved at all with physio, and over the last 2 weeks I’ve also developed significant pelvic pain. The pain is a constant dull, burning ache in my lower back, pelvis, and glutes (mostly right-sided). Heat and pain meds don’t really help.
It’s gotten so bad I’ve been in tears. My GP is currently considering endometriosis, but I’m also waiting on a lumbar spine MRI to rule out back/nerve issues.
Has anyone experienced anything similar or had a similar overlap of symptoms (PCOS + possible endo or spinal issues)? I’m trying to understand what else this could be or what helped you get answers.