u/FUCancer_2008

Happy mother's day to me.

Ended up in the ER last week with pneumonia. Id just gotten into a good groove with PT and OT while also navigating progression of my cancer& this will be my 8th line of treatment for that- not great to have gone through that many lines. BC of the pneumonia ended up puking in the bathroom at my daughter's 4th birthday party. I was so weak I couldn't really participate. My reward for struggling and keeping going is more shit. I'll get up & keep going but at this point I don't know how much longer I can keep doing this. Thanks for reading my rant.

I POSTED HERE LAST WEEK BUT I got pneumonia ended up in the ER then spent my daughter's 4th birthday puking. It royally sucked. My dad & his 3rd wife who I find obnoxious are visiting which makes everything worse. There's this game set my 7 yo loves called Set. She made up a new rule that he has to count to 5 before calling a Set( point in the game). BC she was loosing, she has some deep-seated confidence issues and has to be right or have attention all the time. She's lied to me a few times so far& my dad once blatantly in front of my husband to my dad. She so rediculous & annoying. Only 2 more days tho& they are never getting invited back.im pretty bummed bc my husband & I were supposed to go to a nice hotel/ spa for a couple nights while they were here which is the only thing redeeming about their visit& now bc of the pneumonia and that I can barely see tand up we nixed that. At least the kids like them. Then today I had to schedule scans & that's always a horror show. They only have availability at but crack of dawn times and this go around the only appointment was during a meeting my husband has to be at. I managed to find a friend that can go with me, normally I'm ok going alone but bc I'm so weak I don't feel comfortable doing that this time. The awful times are bc my Dr wants scans every 3 months & my insurance won't authorize until it's been 3 months so I'm always booking and trying to get in within 2 weeks, it's such a stupid dancethat I have to deal with& having my husband there on scan days is so much better, it's all just so stupid, I'm too tired for all this shit.

Id really just like a break of any kind. ID JUSY GOTTEN BACK INTO A GROOVE & MAKING PROGRESS FOR MY PT& OTagain after the last issue- seizures and on set of epilepsy mid December- from my strokealmost 3 yrs ago due to my first line of treatment+ the cancer Now pneumonia. Like can I get 6 months to recover a bit. I get to a decent place & then end up in the ER with some new horrible thing to deal with. ikeep getting back up & going but I don't know how much longer or many times I can keep doing this. It feels like anytime I get anything remotely good going in my 🧬 Fe it has to get demolished like I'm not allowed to enjoy my life ever again. I'll keep going & getting back up but there's a limit to how much I can take. I'm on anti depressants & have tried 4 different therapist that all immediately did the 1 thing I asked them not to, trouble shoot my disability from my stroke- I do that all the time & needed a space away from that. We don't have a ton of help so I let my dad & his wife visit& they are so much more stress than help.

Anyway thanks for reading I'm having a bad day & needed to vent.

I'm at my daughter's 4th birthday party and hiding in the bathroom puking. This is fucking awful

Well looks like I have progression 7th line?. I've lost track.

Talk about a new plan Friday.

Anyone find luck after this many lines? I HAD 1 YEAR ON TRQAP AND EVERYTHING ELSE IVE BEEN BLOWING THROUGH. ALL THE ENDOCRINE THERAPIES, CDL 4/6IMHIBITOR. NOR Orserdu, I have the esr1m mutation

I'm breathing pretty rough& pretty rough and yeah my SO2 was 84, on oxygen it's back to high 90s

AND. IM GETTING ADMITTED OVERNIGHT SO THEY CAN PUMP A COUPLE ANTIOTICS INTO ME, IT WAS PNEUMONIA WIRH MAYBE A COUPLE SMALL PULMONARY EMBOLISMS

Update I'm free. Going home with antibiotics, and oxygen

I've had a lot of naseaubit no actual puking until just now. I went long enough that zi forgot how very awful that is. The acid is really irritating my throat now. 🤢