u/Eyesee_ur-intentions

▲ 1 r/BFS

Trying to stay calm

I want to say these past two weeks have been very scary, up and down roller coaster for me. I’m 24 (f) and it all started with my arm feeling like it’s giving out, I don’t know the word for it but for example doing my hair or cutting veggies would wear my arm out and it would last I want to say the whole day, then with rest it’s fine . I will like to say I have dislocated both shoulders a good amount of times but really I’m noticing it really with my right arm. Other symptoms I’m having is my right arm just feeling sore, I pressed on where I felt like it hurt the most and I it was like a shock to my whole body, left leg numbness, legs falling asleep easy , and ear ringing ( not sure if this is connected) Anyways then I started to have muscle twitches (things I’ve had before ) but these were becoming more frequent I get them every hour to minutes of the day and even in parts I didn’t know could twitch. I’m really worried and I am constantly looking at tik tok and most videos I see with the muscle twitches all have *** , I’m young and I have a baby to take care of, my biggest worry is this being what I’m scared of and not being there for my son… it breaks me to a million pieces. Anyways I finally found someone to see me at the end of the month a neurologist, I’m really hoping he will give me a EMG to just give me a peace of mind. I just don’t want to feel alone. And honestly I’m terrified.

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u/Eyesee_ur-intentions — 15 hours ago

Update

Okay so it’s been over a week since my last post, I wanted to mention that I know our minds are very powerful! A little reminder is that I’m a 24 year old female and I have definitely developed a fear and panic regarding ALS. This is not my first fear but I think this could be one of my longest ones and I’m still worried. About two weeks ago I noticed right arm ache, then noticed muscle twitches all over my body, something I know I’ve delt with but just noticed it became way more current. And then looking up my symptoms I definitely became scared. Anyways my arm is coming and going, for example Saturday and Sunday my arm was completely fine and then Sunday night came around after an argument with my boyfriend I noticed my arm was ache/fatigued again. I have noticed some other symptoms such as tingling, cold sensations, ringing in my ear , and my speech. But I am pretty confused when it comes to weakness, I am able to do thing button my clothes, open medication bottle, jars, write and drive without a problem besides again my arm just I guess feeling heavy/fatigued, I am able to do some of the test like get up with one leg, keep my hands up (teven though my right arm gets very sore),and most importantly pick up my son. is it’s weakness or what would this be called ? Again I appreciate everyone on this group helping others and making others feel calm when it comes to the symptoms but these muscle twitches are really freaking me out. Again I have a doctors appointment in may so I guess I’ll give updates until I see the doctor. Thank you everyone.

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u/Eyesee_ur-intentions — 5 days ago