Hi everyone. I was wondering if anyone would be willing to give me some good rheumatolgist recs in CA. I am in the "grey zone" of diagnoses - I have a cross between autoimmune/autoinflammatory disease (AOSD + lupus spectrum) and have found it really difficult to find a rheum who is okay with seronegative disease/anything that does not present as textbook. Generally most of my care gets deferred to rheum so someone who is willing to quarterback for me + wants to take on a challenging case is always a plus. Have had such a hard time finding the right doctor and not being dismissed and really need to find supportive care asap. If they are in SoCal and have an in office infusion center that would be a plus. Also, have not had much luck with ucla or cedars. Thank you! Happy to provide more info as well - pm me.
More about my case if anyone has been in a similar spot: 20s (f), confirmed severe neutrophilic dermatosis on biopsy (refractory); circled through misdiagnoses and treatments, systemic inflammation on imaging, normal labs for the most part, fmf mutations, positive ana, severe raynauds, livedo etc, very steroid responsive