u/Eviljohna

Just wondering how many of those with a diagnosis of Lupus/UCTD/MCTD etc also have vitiligo.

I’ve had a patch since I was young that’s been pretty stable for the most part but recently started developing more. The dermatologist confirmed it with a Wood’s lamp during my last visit and prescribed a cream to help get the pigment going again. So far I’ve only seen them on my face and that’s the only place the dermatologist checked but looking at my medical records from childhood it appears my mom took me in for patches on my trunk too. Since I’m light skinned they’re hard to see unless I’m tanned which lately is: never.

Just curious about any overlap between vitiligo and other AI diseases and if anyone with vitiligo started having new patches crop up after decades of inactivity

A few weeks ago I shared some pictures of the reoccurring small lesions I’ve been getting on my legs for the last couple years. I finally got the results of my skin biopsy and thought I’d share them. I’d also love to know if anyone got similar results from a punch biopsy and what they were eventually diagnosed with.

My results were inclusive so I’m scheduled to go in next week to get 2 more punches done. Ouch. The report stated some observations however: Lichenoid dermatitis - eroded. Inflammatory features with moderately brisk superficial perivascular and lichenoid lymphocytic infiltrates present. The lymphoid infiltrate has a somewhat discrete appearance and focally abuts the dermal epidermal junction with some degree of lymphocyte exocytosis. Epidermal erosion with superficial epidermal necrosis is noted as well.

What they didn’t find were the types of things associated with allergic reactions, either contact or medication related. They also looked for and found no fungus.

The dermatologist couldn’t (and didn’t) tell me anything about these results except that we need 2 more samples to test 🥴

I plugged my results into some AI tools and they indicated that they really should run a wider range of tests to better identify this esp since I have an autoimmune disease. I’ve contacted my rheumatologist to ask if there’s tests I should request. Hopefully I hear back from him in time.

I really was hoping to learn something definitive and am a bit sad about that. It does however seem like this is something a bit complex and hints at my immune system destroying patches of skin. But WHY?!? 😫 Hopefully I get more answers this next time and that maybe it’ll even help pinpoint my diagnosis better. And better yet, figure out how to stop this from happening!

Anyone here ever get similar results from a biopsy? If so I’d love to hear about it

PS: these lesions start as a papule, flatten into an inflamed scaly lesion and don’t heal for months. They don’t itch at all but OMG if I disturb one and mess with the scale they hurt like hell and hurt deeply. Weirdest of all, they even erupt on heavy scarred tissue where I’ve had deep injuries in the past. Like I don’t even have hair growing in this scarred skin….its like white thick and void of life yet these lesions seem to love them. I find that really odd

Thanks for listening to my ramblings!