
▲ 19 r/neurofibromatosis
I am so scared and afraid of NF1. I cannot describe my fear for them. I hate it. I met an uncle at a community event yesterday and he a lot a lot of big and small bumps on his body which obviously is NF1. I am afraid of his ugly it is:( I am afraid myself looking like this as I grow older. I know how I will look like and I hate it. It’s so ugly I don’t like it. I’m 25 and that’s is the reason why I have dated. I don’t dare to love. I don’t dare to tell my crush I like him. I want a family myself but I don’t want my kid to get them. I don’t like how I look now either. I am losing my self confidence and self love. I hope there is a vaccine to stop it. I want it to stop growing.
u/Equivalent-Ticket-76 — 12 days ago