Ehlers danlos and sensory issues
I have EDS I’ve currently submitted my genetic testing to determine if I have a subtype before being labeled as HEDS but when talking with my geneticist I’ve run into some issues that I don’t know how to handle.
I’m diagnosed with ADHD and I suspect autism and with that comes a lot of sensory issues especially when I’m overwhelmed or overstimulated.
My doctor was recommending me to find ways to train my body to not hyper extend all the time including getting products like the ring splints that prevent your fingers from hyperextending or a SI belt since I have a history of issues with my hips.
What I’m coming here for is I guess what to do since I’ve been used to dealing with my hyper flexibility my whole life and when I feel as if I can’t move to my full extent it’s a very upsetting experience and I just feel claustrophobic and it pushes me into being overstimulated way faster
For example I’ve had the ability for as long as I can remember to move my feet a certain way that pulls the ankle joint back and allows what I’m assuming is the tendon to slide over the join and it creates a popping noise. Recently for whatever reason I’ve lost the ability on my right ankle to do so without assistance and that has pushed me to almost tears on a few occasions
What in here for is simply how do I go about accommodating my EDS without pushing my sensory issues? Has anyone experienced anything similar that could give some insight? I really don’t want to buy several hundred dollars worth of equipment if I’m not going to be able to wear them.