Adenomyosis diagnosis after 2 negative laps
I got diagnosed with mild/moderate adenomyosis via COGU scan yesterday.
I have had 2 laparoscopies in the past with no endo or anything else found (these per performed by general gynes) both fairly quick surgeries.
I am seeing a surgeon now who is an endo specialist and he was the one who suspected adenomyosis from looking at my past photos.
He is debating whether surgery for potential superficial endo is worth it, especially given i have already had 2, and there was no DIE found in the scan i had yesterday, but i am not sure if it could still be missed even though it was a COGU scan from a gynaecologist?
I just feel defeated given i have had 2 surgeries by people who clearly didn’t have the expertise in this, and feel like I can’t trust that they didn’t miss something that may be even superficial endo. But also don’t know if another surgery is worth the risk/hassle.
The thought of being on hormones forever to deal with the pain is pretty disheartening, and hysterectomy is not an option as i want babies in the near future.
Let me know if you have any thoughts or advice!