u/Ein_Rand

Holy hell the taxol hit

I’m on recovery day 4 of my first round and was not expecting to be in so much discomfort.

This is just a vent. And a little bit of feeling my own feelings. My whole body hurts. My scalp is sensitive. My leg is cramping. My chest hurts. I’ve been walking miles everyday and today I couldn’t get down the block. I thought the ACT regimen was supposed to be like a baby dose of chemo. This is gonna be 12 sucky weeks.

That’s all.

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u/Ein_Rand — 1 day ago

Hey all. Starting adjuvant taxol + herceptin on Friday. I’ve read a lot about what to expect, and have some orders coming, but would love to hear from you. Do I have any over-preparers? What did you learn as your therapy continued?

Also, I’ve been an emotional wreck because I’m so overwhelmed. So humor and whimsy are welcome.

Thanks all.

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u/Ein_Rand — 7 days ago

I fully recognize that this is a first world problem. Starting 12 rounds of taxol next week and have been offered cold capping at my infusion center.

I was going to go for it, but the nurse advised me that it can cause headaches and trigger migraines. I’ve started perimenopause and have hormonal migraines ~12-15 days a month depending on my cycle. On top of that there are a lot of limitations (eg washing hair 1-2 times a week max in cold water, no products, styling, ponytails, no heat at all on your scalp, etc). It seems like a lot of restrictions at a time when I’m already going to feel shitty.

My hair is chin-lengthish and I’ve had a buzz cut before. So I’ve been wondering, should I just let the hair go?

I’m mid-40s and work in a high-visibility, cameras on, professional setting. The hair loss will be noticeable and my clients and team don’t know I’m undergoing chemo.

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u/Ein_Rand — 12 days ago