u/Effective_Sense4538

Ex 25 weeker, currently 32 weeks. He has bilateral grade 3/4 IVH, hydrocephalus and had a subgaleal shunt placed last week. His ultrasound shows a moderate porencephalic cyst on the left side, and doctors say there is also some damage on the right side.

I’ve been reading posts here looking for positive stories. Most seem to be from the US.

I’m based in the UK and worried whether therapies through the NHS will be enough for my son.

I would really appreciate any advice, experiences, or reassurance.

reddit.com
u/Effective_Sense4538 — 16 days ago