Ok y’all it has been quite the journey the last two weeks, but wondering if anyone else has been down this road. I have a persistent visual aura in my right eye peripheral vision that’s been there for 12 days.
Day 1 - had what looked like a visual aura coming on and a mild headache, but the aura never turned into my normal zigzag and was just why seems like a persistent after image. I also had some diarrhea/GI problems that day which aren’t unusual for my migraines.
Day 2 - still there, went to an ophthalmologist and was cleared by her. She has been treating me for dry eye
Day 3-4 - went to my primary doc because I couldn’t get in for neurologist. She gave me sumatriptan and I had a horrid reaction to that. Muscle tenseness, nausea, etc.
Day 5- woke up with level 10 migraine and also started my period. Hoping that was the reason behind all of this. Took advil and called out of work. Headache eventually settled but not the aura.
Day 6-9 pressure headache and nausea that would come and go, and aura still persistent.
Day 10 - finally got to see my neurologist and he was worried about the aura being a fixed blurry spot. I had a retina specialist appointment as well that day and they did a retina CT scan and imaging and everything was normal. Neurologist told me he was calling in steroids to treat it as migraine
Day 11 - I take the steroid, no change to aura but had a bad headache. At some fries and coke and started to feel better. Went shopping all day and when I got home my lower back and legs hurt so bad it felt like I had ran a marathon. Later in the evening my left arm started to hurt the same.
Day 12- couldn’t sleep pain was so bad and spread to other arm and went to the ER. Was given muscle relaxers, fluids and felt much much better. My heart rate was pretty low in the 40’s, I dont recall it ever being that low. They told me to wait to take my daily propranolol until it was up. Blood work came back clean
Now I’m at home with a headache, treating with Advil and still the persistent spot. I have to talk to a new neurologist tomorrow because mine left his practice the day I saw home. I have a visual field mapping test with the retina specialist as well on Monday.
I am so confused about the pain because all I do on Saturday was go shopping… no work out just in my feet browsing. I also drink water to no end these days. I never feel hydrated enough, and have mild dehydration effects so much that I drink 120 ounces daily and have a liquid IV maybe every other day.
Any thoughts or similar stories?