How much is it costing you to recover from flares/ injuries?
This post is inspired by a livestream I watched from an Australian breast cancer group that talked to a patient, a healthcare economist, an oncologist, and a financial planner about the costs about costs and what is/ isn't covered by our healthcare system.
It made me think about RA - I'm recovering from an injury plus a flare and it is costly. The cost of physio, psychologist appointments so I can cry about how stressful it's all been, the cost of buying ergonomic equipment (never mind all the time put into researching what to buy and learning to use them). I'm lucky to have familial support or I'd need to hire a cleaner/ gardener, too.
I have a lot of support that I am grateful for but I'm also annoyed at how poorly I was prepared by my rheumatologist for what I've been experiencing in terms of the financial and emotional costs of this disease, and I wish someone could have been there for me to support me through this.
What have your experiences been? Thanks in advance. Will link the livestream from 'Breast Cancer Trials' if the mods allow because I think it's got concepts/ lived experiences we can all relate to.