Exciting news about enzymes
Hello fellow parents,
My son was diagnosed with a rare mutation at age two. He began a regimen of trikafta and zenpep not long after. Fast forward to age five and his fecal elastase test shows his pancreatic enzymes are normal and he no longer needs to take zenpep! His pulmonologist has only had one other patient with this type of result. However, as we just discussed with the nurse on his care team, there is no regular fecal elastase test in the protocol. There is only so much research out there since the access to Trikafta increased with younger kids beginning to take it. If your child has been on cf modulators for some time it can’t hurt to ask the doctor if you can literally scoop some poop and send it to a lab! Sending you my best wishes.