u/EchoZhao1998

Hi, I’m currently a master’s student and was diagnosed with NF2. I’ve lost my hearing and deal with ongoing communication challenges, and I’ll likely need multiple surgeries over time.

I believe all you are willing to communicate, but it still takes a lot of effort to sustain conversations, work, or daily interaction. Over time, it becomes exhausting and isolating.

I’m trying to better understand this from others’ experiences.

A few questions:

• What has helped you reduce the effort of communication in daily life?
• How do you manage work or study with these challenges?
• Are there any practical strategies (not just emotional support) that actually made a difference?

I’m also thinking about whether there are better ways to design communication or work setups for people in similar situations, but right now I just want to learn from real experiences.

Would really appreciate any insights. Thanks.

👋 Hello, I am diagnosed with NF2 8yrs ago. Hearing loss on both sides, and bificial paralysis. I am now studying in my master’s degree in data science.

I am wondering to do some projects that can help ppl like us. What are urgent needs of you on daily life? Or the most challenging you face due to NF?

Looking forward to any insight. As long as they are manageable (e.g. I can’t hear in the future due to removing acoustic tumor 😟)

I am a master student at MUM. and I feel the most of lecturers of mine are really bad. And really casual. I ask them for one question. And either they don’t know or cannot explain the solution, and ask me to google myself, then bring the answer to find them. I don’t think it’s fair that we pay so much tuition fee and can’t get better education.