u/EBkatty

Firstly- I’m aware this is not some doctor’s subreddit. I’ve had an ICD(Implanted Cardiac Device) since I went into cardiac arrest at 16 years old. Flash forward to now and it’s my first year in college and I’m looking into theatre/film production. I love the people I’m meeting and all the projects I’m seeing be worked on, I would love nothing more but to get into more of it. Heres the thing- heart devices cause limitations- no metal detectors, no heavy lifting on your left arm(it could damage your lead), 6 inch distance between your phone and device(anything with batteries really), 1 foot distance from car ignition systems- it gets weird and specific. Except for a lot of theater equipment. It’s difficult finding people in the production world who have ICDs I’ve had no luck so far. I’m navigating both of these things as a beginner with no experience and it’s scary. And above all I’m most terrified that my cardiologists will tell me this isn’t a feasible career path for my health. But I’m still gonna make it work somehow for as long as I hold this passion and interest for the arts. MY MAIN POINT: I’m interested in taking a lighting design class next semester. If anyone has information or knowledge of components and equipment with magnets in it that I could run into and should ask my doctors about please let me know. Magnets are the main thing that could affect the health of my ICD. It’s not bad if I have a quick brush with things, but constant exposure could be a problem. Thank you for hearing a bit of my story, maybe I could find anyone with a similar problem somehow. If you have any questions about my ICD or cardiac arrest experience I’m more than happy to answer what I can!

Edit: Don’t worry I WILL be consulting my cardiologist and ICD manufacturer- I’m using this thread to get some information on what exactly I should be asking them about first. Also I’ve gotten some great advice and support so fat, thank you all so so much!

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u/EBkatty — 18 days ago

My ICD is mainly for the defibrillator function if it’s ever needed. I partially have Marfan syndrome which caused me to go into cardiac arrest when I was 16. My research has led to a lot of different places for what I can or cannot get close to. Even my own cardiologists have said different things to me about going on rollercoasters(which honestly I’m still going to do regardless). My current predicament- career exploration. It’s my first year in college and I’m leaning towards theatre/film production. As you can imagine it is incredibly niche to hear from ICD owners in this field. I’m scared of equipment and what I can or can’t interact with and what has magnets or not. And it’s hard to ask anyone familiar with the equipment if it’s ok for me because they’re not familiar with ICDs understandably. I have my regular cardio appointment coming up where I plan to ask my doctors what they know though Im worried about either getting not enough information or they just tell me to not risk anything at all. If ANYONE has information on what equipment I should ask about, or even experience themselves I will be so so thankful. Also this is my first time on reddit, super excited to experience some more community and learn more.

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u/EBkatty — 18 days ago