Clinical trials feel different after a brain injury
After my brain injury, I started looking at clinical trials differently.
Things like:
Showing up at the same time
Following a protocol exactly
Tracking symptoms consistently
All reasonable.
Unless your brain doesn’t work that way anymore.
Fatigue changes day to day.
Cognitive load isn’t predictable.
Some days are fine. Some aren’t.
Even getting to the appointment can be a lot.
And then I remembered—
I used to work in the clinical trial space.
I understood how they were designed and what they were trying to do.
They’re built for control.
Consistency. Predictability.
Which makes sense.
But it also assumes the patient can show up the same way, every time.
So the question shifts.
It’s not just:
“Does the treatment work?”
It’s:
“Can the patient fit the trial?”
I didn’t see that gap as clearly before.
I do now.