Eohilia controlling numbers, but globus and "feeling food go down tightness" still there
Hey guys,
So I've been on and off Eohilia for about a year now. Original GI put me on Omeprazole and Eohilia upon seeing my eosinophils on my EGD and my clinical symptoms. He wasn't very versed in EOE, downplayed it pretty quickly. Ended up making an appointment at an EOE clinic at Mass General in Boston. The appointment itself was extremely informative. It was the GI doc, and 2 allergists in the room with me, and they answered more of my questions than anyone has prior.
Basically, they want to put me on Dupixent. My thing is, I was taking Eohilia last Summer, finished the course, got an EGD, and eosinophils were undetectable, although globus largely there. Fast-forward 4 months, December, eosinophils back up, however clinical symptoms largely disappeared until about March of this year.
One option they gave me was doing Eohilia "off-label" and using it year-round, if it's been helping control my numbers. My question is, if I go back on the Eohilia (and Omeprazole), and my numbers go down to zero again, is damage still being done to my esophagus? Is it technically remission and am I in the clear? Am I still putting myself at risk of permanent scarring and damage in the future?
Or all we all just pretty much headed towards Dupixent at this point lol
Sorry for the ramble!