u/Diligent-Activity-70

Mixed results from PET

Well, it’s good that I enjoyed my little chemo break, because it looks like I’ll be asking to restart folfiri + erbitux when I see my oncologist on Monday.

For the good news: I don’t need to seek surgery because there was complete metabolic response with the pelvic tumor and the hydronephrosis has resolved.

For the not bad news: the tumor in my left lung shows persistent but decreasing fdg uptake. Yay! The treatment was working and I can start infusions very soon to keep the cancer dying off.

For the bad news: A 5mm mass is in my right lung. This report is the first time I’ve heard about this.

It has remained stable in size since my scan at the end of November, but between early October and late November it grew from 3mm to 5mm. It is suspected to be metastatic, but is too small for them to measure for uptake on scan.

There’s something else that I need to wait until tomorrow, when I am no longer high, to be able to comprehend.

Fuck, fuck, fuck!!!!

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u/Diligent-Activity-70 — 3 days ago

PET tomorrow

I’ve been fine up until today. Now the anxiety is setting in.

I’m really hoping that the scan will show that the tumors have shrunk and support the evidence of my CEA being in the normal range.

But we all know the crazy “what-ifs” that our anxiety ridden brains can come up with.

I am happy that the preparation instructions have eased up, so I’m less cranky this time since I have less dietary restrictions. I’m ok with one day of no exercise!

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u/Diligent-Activity-70 — 8 days ago