When was the first time someone in a medical field suggested you might have EDS?
I’m not diagnosed but I’ve suspected it for years that I have hEDS or HSD. Recently I went to PT for cubital tunnel syndrome and the lady who evaluated me after looking at my hands “have you heard of EDS?” And she said I likely have it. But of course she’s not a doctor and can’t diagnose. It just felt validating to have someone who has seen it before say hey you should look into this.
I can go through the checklist and I hit most of the criteria, there’s some that I don’t know for sure and can’t know without a medical professional.
I have some friends who have it and they’ve said they wouldn’t be surprised if I did too. The more I read about it the more it makes sense that I might have it and my brother probably does too. If you grow up with someone who can do the party tricks too, you think it’s normal.
There’s a doctor about 50 miles away that treats/diagnoses EDS and hypermobility. I tried to call for an appointment but I was on hold too long and had to hang up. I’ll try again another day.