What is it: IAPMD has been awarded a grant by PCORI.org. For project kick-off they have developed a survey to gather insights from those that have an MRAD, clinicians and researchers involved in developing and providing care for those who have an MRAD, and those who are caring for someone who has an MRAD.
Why: PCORI is an organization focused on patient centered outcomes research. They fund research that helps people make informed healthcare decisions and improves healthcare delivery & outcomes by producing research guided by patients, their caregivers, and the broader healthcare community. Instead of research based on a PI’s area of interest, they focus on what the lived-experience community is voicing needs to be researched and then direct researchers to go research that topic.
Who can participate: Anyone as long as you have some form of lived-experience with PMDD and/or PME. You can be anywhere in the world, no geographic limitations.
When: The survey is open now and they are eager to hear from folks from this community. You got opinions and experiences? They want to hear them.
How: The link will take you to the Ethic Board approved survey. I will say it is very detailed so give yourself a bit of time and focus to take it.