u/Dazzling-Spite-2980

I just had something icky happen. I've never experienced a dislocation to my knowledge and I'm going to assume i still haven't.

anyways, when woke up and stood​ my knee felt "off", not painful, just off. So I sat back down and went to touch it and my kneecap was on the side of my knee/leg???? Like very much not where kneecaps are supposed to be. I think I was still sleepy because without thinking I started pushing it back to where it should be, it took two pushes, there were two loud pops but no pain at all. The fact that it didnt even hurt is so weird to me, like, wtf did I just experience lol???

But yeah, that was uncomfortable.

Hey y'all, I have a referal for my doctor and I just received the paper verion today. Written there is " Concern for EDS with PE findings and POTS/orthostatic hypotension"

I already knew that she diagnosed me with POTS but she has never said anything about PE findings or blood clots. I already messaged her to ask what she means but I'm just kind of shocked that she wouldn't let me know about blood clots. I wont hear back from her for a couple days since it's about to be a weekend.

Has this happened to anyone before?

I don't know how anyone starts to get diagnoses, I just feel so overwhelmed.

I've final got some diagnoses but it feels like the list of need keeps growing and the things thay cause me the most pain aren't diagnosed

I final got an appointment scheduled in August with a genetic counselor online for EDS, but I'm already tired thinking about the chance I have Heds and have to then go through trying to schedule an in person appointment with someone, which would take years. I'm also very sure that I'm dealing with MCAS and recently learned about ME/CFS, which describes me exactly, on top of the main symptoms, for years I've gotten EXTREMELY sick from any kind of exertion, its prevented me from working because evey time I do I end up sick and bed ridden. It completely stops me from living a normal life, I can't travel or meet up with people on a normal schedule because I can't enjoy it, if i can even wake up at all, I get sick and my body flares into this painful state of immflamation.

AND I also know that I need to get seen for stomach issue to make sure everything is okay with that.

The list of things I need to be seen for just goes on and on. Every thing just feels so overwhelming, I feel like I can barely get doctors to believe my pain in the first place, much less have them look for diagnoses that are hard to find.

I know that in a lot of ways I dont NEED a diagnoses for some of the stuff I deal with, but it would be hugely beneficial to have one and to have a doctor admit that it interferes with my life in a major way, that I can get help.

I feel so STUCK.

Are these atrophic? The second one in particular feels hollow and like you could push right through the skin.