I've been really lucky that I've had the opportunity to rest enough to take myself down from severe to moderate. In particular, my pain is a lot better managed now so instead of being in severe pain 24/7, the really bad bouts are only episodic and they don't get as bad as they used to be. But i've noticed it's harder for me to handle them when I do get a bad episode, like how it felt when I first got this illness. At a certain point I got used to the constant pain and nausea and fatigue but now that I'm doing better, all that resilience has gone away and I feel it so much more intensely. Suddenly it feels impossible to get through the moments that I went through daily for so long. I feel grateful but also I wish I had kept some of that resiliency. Has anyone else been through this and have any advice on how to process the pain all over again?
u/CuteAssCryptid
▲ 38 r/cfs
u/CuteAssCryptid — 13 days ago