Anyone else struggling with UK neurology?
So I have grand mal seizures but I'm lucky in the respect they are relatively well controlled. I went through a period of having seizures monthly but they only ever happened when I forgot to take my meds which i learned to control. I managed to go about 6 years seizure free and assumed i was safe for life. All of a sudden I've had about 10 seizures over the last couple months - even though I haven't forgotten any meds (which used to be the only time I'd get breakthroughs).
I tried to contact my neurologist who i had regular appointments with (for 15+ years), and his assistant told me he had discharged me!!! I was never made aware of this, I spoke to him 2 months ago for a check up and he always told me i could ring him whenever i wanted with any issues. He's discharged me with no notice, and when I asked to see another neurologist, they put me on a waiting list for at least 4 months.
I understand my seizures aren't anywhere as frequent as a lot of you guys so my problems probably seem miniscule in comparison, I'm sorry it sounds like I'm moaning over nothing, but I'm just worried because I managed to go so many years without any issues at all, then suddenly get so many on a regular basis :( I'm constantly worried now I'm going to have one every day!
Sorry for the rant I just have nobody to talk to who understands. I wish you all the best💜