u/Curiousone1234567

▲ 3 r/chiari

Hi 👋🏼 I have chiari malformation 1 and a fairly large syrinx that extends from T4 through T12. And my cerebellar tonsils are located 7 mm. I have weakness numbness in my hands and legs and headaches almost daily. I’m a bit skeptical about the surgery I’m supposed to go back in July to schedule my decompression surgery. I have a medically complex child so I need to be able to be “on” for her and show up fairly quickly after surgery. How soon after surgery can you get back to normal things? How long after surgery are there restrictions for things? The first neurosurgeon I spoke to recommended surgery the second initially didn’t but then saw the syrinx and recommended based off of that and my symptoms. I don’t know what to do. I’m almost 31 and I have 3 kids. I need to show up as their mom and our lives are anything but simple. My daughter is in a wheelchair and I have to pick it up and put it in our van. She has a make a wish trip planned for Disney in March or 2027, I worry I won’t be able to show up for her or enjoy the trip if I have the surgery and have complications. I don’t know what to do. I’m very much on the fence. Any advice???

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u/Curiousone1234567 — 17 days ago