u/Curious_Custard_5215

▲ 5 r/chd

I’m (31F) currently 20 weeks into my second pregnancy and processing some heavy news. My first pregnancy ended in a miscarriage last October. This time, our anatomy scan and fetal echo showed an HLHS variant with a large VSD, overriding outflow tract, azygous continuation, and persistent bradycardia (90–95 bpm).

We’ve had a clear microarray/amnio for microdeletions, and we are currently waiting for the results of a full genetic heart panel.

I’m struggling with the "what comes next" part. For those of you who had a child after a pregnancy with a major heart defect:

  • How did you handle the anxiety of the anatomy scan/echo in the next pregnancy?
  • Did your doctors find a genetic link, or was it a "lightning strike" event?
  • If you moved forward with a subsequent pregnancy, what extra monitoring did you have?

TL;DR: 20 weeks with complex CHD/Bradycardia. Looking for stories of hope from parents who had healthy pregnancies afterward.

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u/Curious_Custard_5215 — 11 days ago