▲ 5 r/chd
I’m (31F) currently 20 weeks into my second pregnancy and processing some heavy news. My first pregnancy ended in a miscarriage last October. This time, our anatomy scan and fetal echo showed an HLHS variant with a large VSD, overriding outflow tract, azygous continuation, and persistent bradycardia (90–95 bpm).
We’ve had a clear microarray/amnio for microdeletions, and we are currently waiting for the results of a full genetic heart panel.
I’m struggling with the "what comes next" part. For those of you who had a child after a pregnancy with a major heart defect:
- How did you handle the anxiety of the anatomy scan/echo in the next pregnancy?
- Did your doctors find a genetic link, or was it a "lightning strike" event?
- If you moved forward with a subsequent pregnancy, what extra monitoring did you have?
TL;DR: 20 weeks with complex CHD/Bradycardia. Looking for stories of hope from parents who had healthy pregnancies afterward.
u/Curious_Custard_5215 — 11 days ago