u/ConsequenceBig485

Hello Everyone!

I recently found out I have Danon Disease.🫀

After years of heart issues, surgeries, heart failure, and eventually a heart transplant, I finally have an answer for why this happened.

Danon Disease is a rare genetic disorder that mainly affects the heart and muscles. I had never even heard of it before my diagnosis.

Honestly, I’m still processing it all. Part of me feels relieved to finally have clarity, while another part feels overwhelmed knowing it’s genetic and so rare.

Just wanted to share this because rare diseases can feel incredibly isolating, and maybe someone else out there is searching for answers too.

Rare doesn’t mean invisible.