Help With Rheumatologist
Hi everyone! I have a mast cell disorder (finding out which one in a week) and was told I need to get tested for EDS. I need advice on what to bring up to my rheumatologist to make sure I'm properly advocating myself with little to no knowledge on EDS. I was told to get evaluated because I have crooked fingers, joint pain, tmj and possible hypermobility. Many family members are also hypermobile and have a high chance of being undiagnosed with EDS, especially my mom. What do I ask for? What are some other common symptoms? My heart tests come out normal so there is no cardiovascular threat. I was also referred to a dysautonomia clinic.
u/Connect-Squash-4631 — 3 hours ago