So tired of SOB!!!
I’ve had IDA for over 5 years now. I need 3-4 infusions of INFED a year to stay alive. I’ve had every test, been through 2 cancer centers, and 4 Hematologists. They can’t find anything wrong.
I’m not looking for advice, I just wanted to rage and I figured some of y’all would understand: I CANT BREATHE!!!!!!
I’m so so so so so so so so tired of being tired from feeling like I can’t get enough oxygen! My chest, diaphragm, and shoulders get tired and achey from taking so many deep breaths throughout the day. I yawn constantly. I’m lightheaded and feel close to fainting much more often than I ever thought possible. But guess what? My bloodwork is mostly normal so I just wait until I’m sick “enough” to get another infusion and the cycle starts over again. I’m only 40 and I feel like I’m 70. I’m so over it!!!