Looking for advice, off label medication uses, solidarity, anything..
I have been dealing with painful intercourse since losing my virginity at 18 (i will be 28 this year). I’ve had a biopsy positive for LS but my vulvar Derm/GYN specialist says clinically I am more like LP. My labia minora is 90% atrophied/gone. I am also 8mo postpartum and breastfeeding which I know is not helping whatsoever. I’ve never had an orgasm, can count on one hand the amount of times I’ve had pain free sex (mostly after many many alcoholic bevs), my marriage is being affected, I have ZERO libido because of this. Intercourse causes blisters, extremely red tissue, tearing of my tissues, throbbing pain, etc. Please I need to know what else to try.
Treatments I have tried are:
- clobetasol
- intramuscular steroid injections
- surgery to remove scarred tissue
- pelvic PT
- moisturize daily
- estrogen cream
- numbing cream during sex
- vaginal dilators
- vitamin E suppositories
- V Magic moisturizer
- hyaluronic acid suppositories?? (Has anyone tried these for moisturizers??)
Was just prescribed tacrolimus ointment to trial. I am seeing research on JAK inhibitor?? Going to massage my Dr about this one.