u/ComprehensiveDot6474

Today I’ve seen a second neurosurgeon after being horribly dismissed and gaslit by a previous one to the extent that he told me chiari was not impacting my life at all and I should just live my life! My new neurosurgeon listened AND heard me. He spent time going through options and offered me surgery in 3-4 months time. He told me all my symptoms were chiari related and that he could clearly understand how these were impacting me. I have to have some updated imaging done and then decide which type of surgery I’m going for as he’s given me two options. My message to anyone who is currently being gaslit or dismissed - is keep advocating for yourself. Keep pushing! Find a specialist in Chiari if you can. I almost gave up earlier this year, and accepted I’d be living like this, now, although I’m scared of surgery, it feels like there’s a chance of improvement that I won’t just stumble through life in pain!