u/Commercial_Staff5706

Afternoon, for those HLHS that are into adulthood. What advice would you offer for parents who have a child with HLHS. My son is 10 and is doing well, however, there are times when we get little scares about his liver function etc. it’s easy to overreact and overthink about the negative possibilities or outcomes. It’s almost like having PTSD as a parent. I remind myself to focus on what I can and cannot control but easier said than done. I hope this makes sense. God bless