u/Cold-Confection6091

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I (32M) have hyper-POTS, chronic pain, and dysautonomia that greatly limits my life. My wife is everything to me, but im not sure how to talk to her about the seriousness of my condition.

My wife knew about my condition when we met and she helped me out of a really dark place. Ive had 7 beautiful years with her, many of which were mostly symptom free. However, about 6 months ago I had a bad flare up and ive been mostly bedridden/struggling.

Sometimes she gets it - she can see the pain on my face. But other times she doesn't get it. My spoons are very limited and its tough sometimes to understand how taxing going to the grocery store or doing laundary is. Sometimes going to a doctor's appointment is all the energy I have for the day.

Ive accepted this life, and im determined to look for subtle ways to improve and live a happy life. But I dont think i will ever be healthy, capable of holding a good job, or able to give her the life I know both of us wanted.

I want to tell her how bad it feels. To apologize for bringing her into this life. And to let her know I will always struggle. I just cant do the shame anymore - if I have to be in such pain at least i shouldn't feel guilty too. Its killing me inside.

Have any of you been in a similar situation? Advice?

​

I (32M) have hyper-POTS and dysautonomia that greatly limits my life. My wife is everything to me, but im not sure how to talk to her about the seriousness of my condition.

My wife knew about my condition when we met and she helped me out of a really dark place. Ive had 7 beautiful years with her, many of which were mostly symptom free. However, about 6 months ago I had a bad flare up and ive been mostly bedridden/struggling.

Sometimes she gets it - she can see the pain on my face. But other times she doesn't get it. My spoons are very limited and its tough sometimes to understand how taxing going to the grocery store or doing laundary is. Sometimes going to a doctor's appointment is all the energy I have for the day.

Ive accepted this life, and im determined to look for subtle ways to improve and live a happy life. But I dont think i will ever be healthy, capable of holding a good job, or able to give her the life I know both of us wanted.

I want to tell her how bad it feels. To apologize for bringing her into this life. And to let her know I will always struggle. I just cant do the shame anymore - if I have to be in such pain at least i shouldn't feel guilty too. Its killing me inside.

Have any of you been in a similar situation? Advice?

​

I (32M) have hyper-POTS and dysautonomia that greatly limits my life. My wife is everything to me, but im not sure how to talk to her about the seriousness of my condition.

My wife knew about my condition when we met and she helped me out of a really dark place. Ive had 7 beautiful years with her, many of which were mostly symptom free. However, about 6 months ago I had a bad flare up and ive been mostly bedridden/struggling.

Sometimes she gets it - she can see the pain on my face. But other times she doesn't get it. My spoons are very limited and its tough sometimes to understand how taxing going to the grocery store or doing laundary is. Sometimes going to a doctor's appointment is all the energy I have for the day.

Ive accepted this life, and im determined to look for subtle ways to improve and live a happy life. But I dont think i will ever be healthy, capable of holding a good job, or able to give her the life I know both of us wanted.

I want to tell her how bad it feels. To apologize for bringing her into this life. And to let her know I will always struggle. I just cant do the shame anymore - if I have to be in such pain at least i shouldn't feel guilty too. Its killing me inside.

Have any of you been in a similar situation? Advice?