u/CobblerSure9683

Hi all,

I got diagnosed with EDS a few months ago after being diagnosed with POTS a year and a half ago.

I have been referred to a vascular surgeon in NZ who said they may be able to help. I get pelvic & leg pain as well as blood pooling especially after a shower (my legs go different colours). I also experience a heavy feeling in my legs.

Does anyone have any experience with any vascular surgery? Has it helped? I struggle a lot with lightheadedness and the brain fog & fatigue. I’d love some light at the end of the tunnel but want to remain realistic.

Thanks!