Hi All,
To get straight to the point, should I say directly to the optician/ ophthalmologist that I’m concerned I have Myasthenia Gravis? I’m scared of being dismissed.
I’m 40, developed a squint (strabismus) about 6 months ago, both eyes, one worse than other. In meantime, I’ve noticed I look bad in photos. I can’t smile like I used to (have always had this big gummy smile, which wasn’t exactly pretty but was a thing people always seemed to like about me). I can still smile, but it’s smaller & less friendly looking. In work, I basically struggle to keep an expression on my face & have had a couple of comments like “am I boring you?”.
I don’t seem to have droopy eyelids, maybe just very slightly. Ive hooded eyes naturally I think.
The big thing I’m scared to bring up is how weak I am. This is not new, going on a few years. Particularly my upper arms & neck. I spend a lot of my spare time in bed. I’ve learned to live this way. My partner says I have a phD in resting.
I’m scared to make a fuss. When I raised the squint and double vision, I got a pretty dismissive response. I tried to push to see an ophthalmologist, instead they’ve sent me to a orthoptist who gave me prism glasses that are really nauseating. I don’t want to be labelled negatively. I can live this way, you know? I’ve learned to live with this.
I’m scared if I say to the doctor I think this is what is going on, that will get a bad response. Im familiar with the ego of doctors from my work. I’m also scared of having to get loads of unpleasant testing & there actually be nothing wrong.
Have you any thoughts? Should I pretend I’ve no idea what might be going on?
Thank you so much in advance