PLEASE check out NORD (National Organization for Rare Disorders) if you need help with MG costs. They were the difference of getting my IVIG vs having to wait. They help with covering costs of patients with rare diseases/disorders depending on factors. HIGHLY recommend checking them out
+1 (800) 999-6673
I had a bilateral robotic assisted thymectomy 3 days ago here are my thoughts. I have a VERY mild case of MG and I have yet to notice any symptoms come up after surgery. I got a dose of IVIG beforehand I think that helped. I’d love to answer any questions if you have the
Mild bruising but scars are healing nicely
walk. Walk walk walk that helps sooo much (outside if you can)
get your hair braided or done so you aren’t fighting with it after the surgery
I asked ALL the questions. Even if they were dumb I am getting surgery, I want to know everything. I even asked to see pictures which was cool
the first day of recovery was rough but it goes by pretty fast
if you have a thymectomy, claim the title of badass. If you have to go through it a morale boost helps 🤣
Eat. Your. Fiber!! Chia seeds and mission wraps helped me the most. Meds can make you constipated!
listen to your body afterwards. Sometimes all I needed was to walk around to loosen up my chest muscles and I felt better
take the time off work to recharge. It’s better to go back to work when your physically ready than beforehand and put yourself at risk