New to this world
Hello all, this past weekend my 10 year had 3 unprovoked seizures in his sleep. We caught the second (we were all asleep), EMS called, transported to ER where he had his third. They seemed like tonic clonic. We were transferred to CHOC where he was admitted for observation. All labs came back normal, nothing that is glaringly obvious as the cause hence neurologists deeming this as unprovoked.
We were discharged yesterday with orders to follow up and schedule sleep deprived EEG. Im learning how to navigate this world now and not let my fears and anxieties take over my world.
He has some cough/congestion, had a fever and threw up on the 6th, felt better. Threw up again on the 9th and felt immediately better. We went to the river on the 9th after throwing up and had an all day fun in the sun. He went to sleep like normal and then boom. The seizures happened overnight between the 9th and the 10th. (Im just giving background info here)
Long story short. This was the absolute most terrifying moment in mine and my husbands life. To find our little guy non responsive, blue lips, drooling in the bed. This forum can be a scary place, I’m reading so many hard stories. And my heart breaks for everyone here. But I’m also looking for good stories. Stories with happy endings to calm my mind. If you don’t mind sharing your story that is more positive, please feel free to comment.