u/ChillButt3000

Hi all,

I have PoTS (Postural Orthostatic Tachycardia Syndrome), Hypermobility Spectrum Disorder (HSD) and the university hospital treating my PoTS strongly suspects I have Mast Cell Activation Disorder (MCAS).

(Studies show that all three conditions can worsen worsen through a Covid infections and/or increase the risk for long covid (examples of these studies: PoTS [study 1, study 2], HSD [study 1, study 2], MCAS).)

I have to get surgery and stay in hospital for 6 to 10 days afterwards. I managed to avoid Covid infections as far as I know (got loads of PCR tests) so far. The surgeon who would operate on me, supports me in applying to health insurance for a single room.

Has anyone been able to get German health insurance to cover a single room in hospital to reduce infection risk?

Or would the easier way be to get additional private insurance for this? Can somebody recommend one?

Thank you for any ideas!

Hi all,

I have PoTS, Hypermobility Spectrum Disorder (HSD) and the university hospital treating my PoTS strongly suspects I have Mast Cell Activation Disorder (MCAS).

Studies show that all three conditions can worsen worsen through a Covid infections and/or increase the risk for long covid (examples of these studies: PoTS [study 1, study 2], HSD [study 1, study 2], MCAS).

I have to get surgery and stay in hospital for 6 to 10 days afterwards. I managed to avoid Covid infections as far as I know (got loads of PCR tests) so far. The surgeon who would operate on me, supports me in applying to health insurance for a single room.

Has anyone been able to get German health insurance to cover a single room in hospital to reduce infection risk?

Hi all,

I have PoTS, Hypermobility Spectrum Disorder (HSD) and the university hospital treating my PoTS strongly suspects I have Mast Cell Activation Disorder (MCAS).

Studies show that all three conditions can worsen worsen through a Covid infections and/or increase the risk for long covid (examples of these studies: PoTS [study 1, study 2], HSD [study 1, study 2], MCAS).

I have to get surgery and stay in hospital for 6 to 10 days afterwards. I managed to avoid Covid infections as far as I know (got loads of PCR tests) so far. The surgeon who would operate on me, supports me in applying to health insurance for a single room.

Has anyone been able to get German health insurance to cover a single room in hospital to reduce infection risk?

Hi all,

The university hospital that treats my PoTS (Postural orthostatic Tachycardia Syndrome) thinks that I have MCAS, too, but I am only starting out on the path to diagnosis.

I have loads of symptoms that would fit MCAS but reactions to food are the worst and have been for a while. I am on Desloratadin, which helps a lot with overall symptoms, and recently Famotidin.

I would love to try Cromolyn in oral form. In Germany, there is Pentatop and Allergoval that can be taken orally right? Is there any way to get them on prescription? I understand that paying for those out of pocket would still be a lot cheaper here than a lot of other countries but holy hell... a full dose would still be too much for me financially right now.