Im very sick since 2020 (my earlier posts are under Bigriversouth, but I lost that account to a comment on CFS board about Lyme). I developed overnight severe CCI a year ago after a root canal procedure (the tooth was extracted a week later, but 100% times more severe neuro Lyme and Co started immediately with CCI, POTS and dysautonomia). I have confirmed Borrelia in sensu latu, Bart hens, Erlichia&Anasplasma and smaller stuff.
I have been living with this heavy bobble head and all body heavy, dizzy etc (weakness is a bit better thank god!) for one year now with no noticeable improvement. My head weighs a ton and every neck movement triggers vertigo. My accompanying pots and dysautonomia symptoms are a bit better.
I have been doing Buhner tinctures since last June (now 4 times per day, 1:5, 2 ml each herb, I take 3-4 herbs plus blended tinctures). I also do occasional BCX rife, but no big improvements either.
I suspect mold exposure might have played a part in my illness. Im now out of my second apartment where I suspect hidden mold (and saw mold, we removed it 7 yrs ago). I have been living one week in a good new apartment with great air.
My neck is dead stiff and cracks... my worst symptom is front neck (under chin) pulling. When I bend my head backward even slightly my front neck starts to pull and then my head jerks backwards. It is horrible, my whole body is unstable. Cant bend head to sides etc.
Abx and any kind of CCI treatment is out of question, I only pursue Lyme and Co and mold treatment, as these started this thing for me. All imaging is fine.
All thoughts are welcome, esp if anyone managed to get their CCI symptoms disappear with Lyme and Co/mold treatment? This bobble head thing is the most horrible thing. Lyme and Co triggered also scleroderma for me (had a bloody antibody popping up years ago) and my skin is tight, yellowish and thick. This hasnt gotten better, only worse. I know that we should be able to reverse this with Lyme treatment, but how and how long will it take.
Im starting to think that mold might be the underlying cause why my Lyme got so bad...
thnks folks