u/Cheburoll

Today was pretty terrible. I had gastroscopy,and had a feeding tube placed during it. Glad it was all under anesthesia,but hours later my nose and throat are still so sore,and i barely talk because it's very painful. The tube is very thick,and doctor said it's a drainage tube? But they are still going to feed me through it? I don't get it. It's my first experience with a feeding tube. I've been very hungry entire day, and then i didn't even get any dinner. I would be happy to have their usual evening sandwitches,but it just so happened that when the buffet guy was walking around the wards i was talking to the doctor,so the guy straight up skipped me. Fuck, i'm so angry and sad. I cried a lot, hell,i am still crying as i am typing this.

At least i had lunch, but i didn't eat much because of pain. It was some cream soup, i think a pumpkin soup? Honestly, don't know, because i ate only a little. There were also peach pieces and lactose free yogurt as a dessert. My mom ate the peaches. Said they were alright. Yogurt was nice,it was strawberry flavored this time. The soup was honestly very good,but i was in painnn Idk how to rate it, considering the circumstances, i'll leave it at 5/10

Some really good news today! Talked to doctors today, they said i'll have a gastroscopy tomorrow,and i'll have a nasoduodenal feeding tube placed, and i'll be transferred to the gastrointestinal department so they could monitor me to prevent refeeding syndrome. After that they'll send me home,and i'll be in ambulatory care,they will be giving some meds for gastroparesis. I hope i'll finally be able to gain some weight, since i've still been throwing up every day due to my stomach issues. This will probably be the last post for a while,since i'm not sure if i could still eat solid food after the tube will be placed, and i feel like i'm posting too often,idk.

The food was pretty meh today though. Potatoes and 2 boiled eggs, in mustard sauce...with lactose free yogurt...4/10. Eughhh i hate the mustard sauce and eggs,they made me so nauseous, at least potatoes were good (they are hard to mess up tbh). Yogurt is also good,as usual. Hovewer, i got some herring fillet and camembert for dinner later,and i LOVE herrirng,so it made my day a bit better

I was finally heard,i am getting a colonoscopy, gastroscopy and gastric emptying scan soon,and i will talk to a dietitian today...i am very relieved, thank god there was one doctor who listened to me. It took so much goddamn effort to be heard though, i'm still pretty frustrated

Ok,now to the lunch. Today i have potatoes again, turkey breast in gravy,some veggies, mandarins as a dessert and lactose free passion fruit-apricot yogurt. 9/10. I really liked it, meat was soft and delicious, as a fan of potatoes i did not mind them today again,veggies vere good too,the only problem is that broccoli and cauliflower make me bloated,so i didn't really touch them. Yogurt was delicious as always. Also i liked gravy..it's quite salty,i like salt...

I decided to only post lunch,because honestly the breakfasts and dinners here are all the same,sandwiches

So,lunch. Potatoes again, red cabbage, meat (pork? Sorry,i am bad at identifying meats by taste.) in Bratensoßen,i assume? Since i am not german,not sure how it's called exactly. Apple puree as a dessert. 6/10. Eh,meat has weird chewy texture, and it barely had any taste. Potatoes were fine,but again i had to add salt. I didn't eat red cabbage because it makes me very bloated,i don't tolerate it well. Apple puree was nice,though just like cabbage apples make me bloated,but i was hungry so i ate it. Will regret it later.

Since today is Sunday nothing interesting is happening. Anxiously waiting for tomorrow to come,and hope that the misunderstanding with my misdiagnosis will be cleared,and i'll get to see a gastroenterologist,and ideally also a dietitian. By the way,today for whatever reason nurse gave me Fresubin,but the one with lactose. I am lactose and gluten intolerant. I told him that,and he said they don't have lactose free ones...sigh,they gave me lactose free ones yesterday,did they ran out of them? I..hate this hospital...

First i'll talk about the situation from my previous post,and then about the food...i am so furious

TW for non ED weight issues (not sure if i need to tag post as spoiler,but i did it just in case.)

So,turns out doctors wrote that i have anorexia and bulimia,even though i have a SHIT TON of medical documents stating otherwise,i have Ehlers-Danlos syndrome and 20+ diagnosed medical conditions,most severe of them currently being my GI issues (severe constipation caused by slow motility, dolichocolon and colon ptosis). I also seem to have gastroparesis,since i feel full quickly after a few bites,and i am constantly nauseous,which makes it hard for me to eat and gain weight. I have critically low weight, and my geneticist recommended me to go to hospital to gain it,so i did that. But of course it's easier for the doctors to write my issues off as psychological,since i was previously diagnosed with depression,and they wanted to discharge me today. Thank god today i talked to a doctor who spoke with me in a language i am fluent in (i am from Ukraine,and i can speak English,Ukrainian and russian fluently,but my German isn't great.) The doctor spoke to me in russian. I explained her everything,and she said that she will talk to other doctors to clear up the misunderstanding, and will ask a gastroenterologist to come see me. But i'll have to wait til Monday. If they continue to dismiss me i'll ask to talk to a patient advocate. I will not tolerate such treatment.

Now to the food: 1.breakfast. usual German hospital breakfast, basically same as i had on dinner,though i managed to get more cucumbers this time (i ate some already before i took the photo). Also i got some cherry jam, coffee, and they had lactose free passion fruit-apricot yogurt. 6/10. Again,it's fine, just nothing incredible. Yogurt was the best part probably (and cucumbers). I also had strawberry flavored Fresubin,better than the previous one with chocolate.

2. Lunch. Boiled potatoes, with chicken(?) meatballs,in a gravy that i honestly can't identify..? Tasted like it had some milk there. + mandarins without skin as a dessert. 8/10. Potatoes were fine,but i added more salt, meatballs were really good, i enjoyed them a lot with gravy. Mandarins were nice as well. Overall good,i enjoyed it.

1. Lunch. Some kind of soup, with carrots and potatoes and strawberry jello (9/10). I actually enjoyed it a lot, soup was very yummy. Strawberry jello was just ok,i guess

2. Typical german dinner, "abendbrot." For some context,i am here to gain weight,since i have severe gastrointestinal issues caused by Ehlers-Danlos syndrome,and i have cachexia. Not sure how this is supposed to help me gain anything,but anyway. Made myself sandwiches out of stuff they were offering. Gluten free bread, leberwurst, cheese,bologna, cucumbers and pickles (sad that i couldn't get more),woodruff jello and orange juice. I like eating cucumbers with salt a lot,asked my mom to bring me salt from home lol. 6/10. It's just okay. Love cucumbers tho. A lot.