Hi im Noah, Im 21M, almost 3 years ago I began having a cold/flu every month then it started turning into bronchitis. Almost every 2-3 months I was deleveloping bronchitis after colds. Then November 2024 I started having presyncope episodes with tinnitus, vision darkening, dizzy lightheaded and stomach pain only in the shower. Then April 2025 I was out with friends and my partner and I ended up feeling really weak and sick. I sat down while my partner went and got me water and then I felt so nauseous so I went to bathroom but I didn't ended up making. I passed out and then partner helped me up went outside and passed out again.
Ever since that day ive been developing new symptoms thats kept getting worse and worse.
Symptoms:
My main symptom being Post exertion malaise
-Dizziness and pre-syncope
-Heat and cold intolerance
-Chronic exhaustion not related to exertion
-Need to lie down after eating or showering
-Shortness of breath
-Chronic “coat hanger” neck/shoulder pain
-Brain fog and memory issues
-Tingling and numbness
-Trouble sleeping
-never refreshed after sleeping all night
-Visual changes
-Photophobia / light sensitivity
-Ringing in ears
-Intermittent hearing loss
-Back pain (nerve pinching, stabbing, burning, pins/needles)
-Muscle pain and weakness
-Joint pain and stiffness
-trouble walking from pain
-nausea
-Discomfort after small portions of food
-Chest pain, tightness, and heaviness
-Heart palpitations
-Sudden excessive sweating and fever
-Air hunger
-Coordination and balance issues
-Tremors
-Painful convulsions
-headaches for days then a Migraine with aura
-Bloating
-Abdominal pain
-Excessive belching then hiccups
-Loss of appetite with nausea
-Episodic increases in pain, weakness, or reduced mobility
Many more that I can't remeber
I used to work 50 hour work weeks in an urgent care and after hula hoop for hours and stay out till 3-4 in the morning with friends. I used to play videos games for hours and spend my whole day shopping. Now I work 32 hours and have 10-15 symptoms during my shifts and I only work because I need to live and pay my 5k in medical bills because of this and rent and my car and to eat. I don't go out after work because I feel so sick, im stuck in a cycle of exertion and crash and my most recent symptom ive developed was pain while walking almost making it impossible to do anything.
Not to mention ive had to move one from my dream of being in health care because I've gotten so much worse in the last year. After three months of working at a bakery and doing the same thing everyday I forget what im doing, how to do anything, where anything is at. I loose all thoughts and memory it makes it so difficult.
I sleep all the time, im exhausted and hurting. I've been to so many doctors telling me its in my head and not listening to what im saying giving me 15 minutes before deciding they can't help me.
From all my research over the last 10 months this sounds like mecfs but if anyone can give me some other explanation<3