I was diagnosed in my late 20's (I am now in my early 40's) and have managed to avoid the use of immuno-suppressants until recently. Previously, my flares were in knees and elbows, aside from an Achilles issue, and were all treated with cortisone injections. About 6 months ago I got dactilytis for the first time in my 2nd toe, and have tried injections and oral prednisolone but nothing has worked. The inflammation moves around my toes and under my foot, so walking and exercise is very painful.
I've tried sulfasalezine for just over 3 months and nothing has improved, if anything it's worsened, so I am wondering what's next? I have an appointment in a month (in the UK on the NHS) and I'm guessing it will be methotrexate... Any good news stories about using it and dactilytis?
Any advice on what I could or should push for?
I am not the active person I was before and I'm definitely not the dad I want to be for my boys, so I'm pretty desperate but trying to be proactive.
Thanks for reading.