u/Calm_Challenge_623

I was diagnosed with Type 2 narcolepsy earlier this year, but had a weird experience this week that I was told was cataplexy. It seemed random and not directly tied to an emotion so I was wondering if anyone has experienced something similar?

One morning this week, I woke up to my alarm and realized the alarm I set the night before was a dog barking sound (I switch between different apple alarms). Since it was a more annoying alarm sound then usual, and I heard my roommate getting up, I got out of bed to turn it off. As soon as I stood up though, I fell/collapsed, like my legs gave out. I thought that was weird and stood again, maybe took a step, and fell back down. After that I kind of gave up and wasn't awake enough to be scared, so I just crawled to my phone, turned off the alarm, and sat there for a few minutes. Afterwards I stood up, was okay, and went to take a final exam, but it was still a little concerning. I went to my college's urgent care that evening and they said my vital signs were normal so they thought it was cataplexy. I had messaged my sleep doctor asking if it was related to Modafinil, but he also said it sounded like cataplexy. Has anyone experienced something similar?

If this does sound like cataplexy, how likely is it to happen again? I've had EDS for years, but never cataplexy. Could future international travel trigger it?

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u/Calm_Challenge_623 — 11 days ago