u/ButtBeanBrigade

I am a female diagnosed years ago with SebDerm. I have a few autoimmune issues as well. Because of the autoimmune stuff I already have a strict diet and not a lot of wiggle room with that.

The problem is when one thing flares, every-freaking-thing flares. Every dang time. Each condition is painful so when the SebDerm joins the party I’m just over it.

I use Nizoral as directed and MCT oil but the only thing that actually works is getting rid of my hair. On one hand I’m lucky because it works within days every time. On the other hand, as a woman, buzz cuts really suck to go out into public with.

I’ve had to do this a few times. I like to think of myself as not vain, and I’m really not, but the amount of hate heaped on me for not having hair is amazing. I literally can’t go a day without getting (at best) unasked for advice on how male I look and how to fix that or (at worst) literally screamed at by strangers about how ugly and disgusting I am.

I’m sure I could spend months dealing with the intense, burning bruise pain at even a slight breeze touching my scalp. But honestly with the autoimmune crap I’m already past my pain limit and I’d rather get screamed at than put up with even one moment of unnecessary pain.

So here we go again, all. For anyone out there who deals with this condition: so much love to all of you. Because it sucks, lol.

Bonus pic of my Fuggler, Stinkface aka Stinky. He doesn’t have SebDerm but is super understanding.

u/ButtBeanBrigade — 11 days ago

My mom got cochlear implants about 8 years ago after Menieres wiped her hearing out.

3 years ago she started acting strange: suddenly unable to do anything she used to like banking, turning off ovens, using a toilet…making up entire situations in her head, lying in her own filth for days at a time.

I eventually moved her in with me but it never got better and kept getting worse. Her whole personality just changed and she started lying about important things, telling nurses I wouldn’t let her eat even when there was ample evidence of it not being true.

I took her to so many doctors for years and they ran every diagnostic they could but nothing was found. I tried to get her into therapy but she would scream and throw things. Dementia and Alzheimer’s were ruled out.

She is now in assisted living and after all the lies, screaming and literal crap throwing I rarely see her. The doctors finally got her in with a cochlear implant specialist and it turns out her implants both shifted around in her head pretty significantly a while ago.

The doctor told me this could have caused her personality shift and the things we went through with the her could be because of the implants.

I don’t want to call a doctor a liar, he has no reason to. But I thought I’d get other opinions too…from people who have or know about cochlear implants.

I’ve just tried so much with her and it’s been years of hell. I’ve been burned so many times by her actively trying to get me in trouble, not to mention her always flinging her crap at me and laughing about my multiple autoimmune conditions and how she hopes she makes me sicker.

Does shifting of the implants cause such drastic changes to a person?

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u/ButtBeanBrigade — 12 days ago