Can’t get past every other day clob 1.5 years 🤷🏻♀️
Just looking for reassurance that this is not INCREDIBLY uncommon.
I’m generally fine now feeling around 85 - 100% normal again I am always aware of my vulva lol- I’ve lost hope on ever going back to full normalcy. But, I can have sex and live my daily life with minimal discomfort which is a huge win. The discomfort but it is not as intense and does not last as long as before.
But what worries me is I cannot get past every other day clobetascol for all this time. If I do try to taper more than this, I end up in a full flare. I’m concerned about steroid atrophy at this point but my Derm and gyn don’t seem to be.
My last taper (I started in November and applied daily right up until March when I finally felt about zero discomfort.) Moved to every other day since then and feeling ok. I just wish I could get to the 2-3x weekly maintenance like so many seem to. 😔
Sending love!