u/Bulky_Procedure_9936

▲ 5 r/POTS

Impasse with doctors

Hi, I'm from France (pots is not well know here) and I'm encoutering real issues about my probable Pots, and especially with doctors.

After a lot of tests prescribed by my internal medicine doctor, an orthostatic tachycardia clearly appeared, without any other issue (the effort test showed it, with the doctor indicating the ivabradine prescription to be discussed with a cardiologist, besides that my MRI, cardiac echoes and other tests were normal).

I can't take any betablocker because of my uncontrolled asthma, so the ivabradine is the only possibility.
I've had my tachycardia for years now, but it's getting bad with any effort (such as simply standing up) and is getting on the way of any activities.

I went to a cardiologist/rythmologist, with the letter from my doctor for ivabradine, and She just said that the effort test is not a proof of anything, that deconditionning is surely the mere cause and explains everything. I showed her my watch files showing that my heart could jump to 180bpm just by climbing one floor slowly, and to 160 bpm by walking, but she said that numbers weren't the point, only variations were.

She did an ecg (I was layed down, so yes totally normal) and said that everything was normal, but that my PR waveform was long (200ms) and that she didn't see any indication for treatment. She insisted on reeducation and deconditionning, and asked me to do a holter (again) to see if there was any rythmologic indication to do anything.

I'm just lost, tired with all of the tests that I did, and I don't know if it is even worth it, knowing that she appears to not wanting to treat it anyways.

Do you have any advice?

reddit.com