My Mom passed 4 years ago, I think my aunt now has ALS
My mom died of bulbar ALS. She had genetic testing. It was negative. However her aunt passed from ALS. I saw my aunt today. She told me hasn’t felt well in a year. She thinks it’s from Covid. Her voice is horse. She is slurring. She told me she is super emotional and can’t stop crying. She is coughing and choking on water. She is unstable. She has always been very healthy but she sounds and looks just like my mom did when she started getting sick. It was haunting.
I am almost convinced she has bulbar ALS. Should I say something to her and also what does this mean for me and my family? Does the medical world just not know enough about this terrible disease to have a grasp on genetic causes?!?! One common theme among my mom, her aunt and my aunt is that they have all had EXTREMELY stressful lives. Could this factor in?